Article | June 3, 2026

New Partnership Aims To Improve Access To Rare Disease Trials, Includes NC Clinical Research Site

By Nancy Lamontagne, NC Biotech

A more coordinated approach to rare disease trial access is taking shape through a partnership designed to reduce fragmentation for patients, providers, and research teams. By connecting a specialized clinical research network with a technology platform focused on pre-approval treatment pathways, the collaboration introduces a structured referral process that improves how potential study candidates are identified and routed. Physicians and specialists gain a clearer way to match patients to evolving eligibility criteria, while patients and families benefit from added navigation support and streamlined communication. The result is a more efficient path from initial inquiry to site-level evaluation—freeing research teams to focus on high-quality matches and accelerating the development of therapies for complex, underserved conditions.

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North Carolina Biotechnology Center