Creating Understanding And Partnership In The Rare Disease Community

By Beth Dickson, CRO Partner Manager II

In my role as CRO Partner Manager II, I’m responsible for working with some of the industry’s largest contract research organizations to implement patient convenience programs. With an increasing focus on what’s needed to recruit and retain participants in clinical trials, momentum towards patient centricity has surged. In fact, in our survey last summer, 97% of respondents agreed that providing technology solutions for patient engagement in clinical trials can positively impact recruitment and retention.

While these trends reflect the prioritization of these services by the industry, it’s built on the needs of those participating in research – the patients and their caregivers. Nowhere are these programs more needed than those with rare diseases.